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'Brave fight' Parents of Cork boy Fionn Barry 'devastated beyond comprehension' following his tragic death

"Fionn was the most courageous, brave, determined and gorgeous little boy"

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Fionn Barry RIP

Fionn Barry RIP

Fionn Barry RIP

The parents of young Cork boy Fionn Barry have said they are “absolutely devastated beyond any comprehension” following his tragic death. 

Their seven-year-old son, who endured multiple conditions including cerebral palsy, global developmental delay, cortical visual impairment, infantile spasms and extreme reflux, died following a long fight with illness.

Trevor and Brenda’s only son was unable to walk, talk, stand or sit without help.

In 2018 the family were told that Fionn had a terminal illness and that they should take him home to “make him comfortable”.

Both full time carers, they were committed to giving their little boy the best life he could have as local communities rallied together to help him.

However, in an updated post on the 'Fight for Fionn' Facebook page this morning they wrote: “In all my wildest dreams we never thought we would be sharing this.

“Fionn was the most courageous, brave, determined and gorgeous little boy.

"To be his parents was the biggest honour of all time and we fought fiercely for our boy from day one. We are absolutely devastated beyond any comprehension and not sure how we will get through these next few days. We are so grateful for the massive support network around us and we are certain they will hold us up in the coming days and months.”

His parents added that they had “left no stone unturned in our efforts to make him comfortable and provide him with what he needed to keep him safe, healthy and here at home with us as much as possible.

“This is something we absolutely could never have achieved without the unwavering support and kindness from everyone for our #FightforFionn campaign. Fionn Patrick Barry had the best of everything and was surrounded with so much love for every minute of his short life.

"Fionn touched the lives of so, so many people and he was given the honour of being a little blue hero, a king bee on board the bumbelance as well as becoming a junior paramedic only last Tuesday morning.”

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They also said they were “truly grateful to the wonderful charities who supported us in our efforts to keep Fionn comfortable and also to the many people, businesses and communities who rallied together when we needed it most. We do not want to name anyone for fear of leaving someone out but please know that if you helped us in any way we are eternally grateful.”

They revealed that Fionn had “spent so much time lately in the puffin ward in Cork and the care, love and dedication they continually showed him and us was second to none. We were blessed with nurses who cared for him as if he was their own.”

They added: “We want to do one final thing for our little man and that is to give him the send off he truly deserves and I know everyone will help us with this.”

A notice on RIP.ie states that “Fionn, 7 years, beloved son of Brenda (nee O'Connell) and Trevor Barry, passed away peacefully at home after a long and brave fight.

“Sadly missed by his parents, Granda Pat, aunts, uncles, cousins, wide circle of friends, extended family and everyone that cared for him so lovingly,” it adds.

Requiem Mass for Fionn will be held on Monday at 12 noon at St Mary's Church, Ballyhea with private cremation after for close family and friends.

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