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spinal fusion Mum who suffers debilitating condition that also affects daughter needs life-saving surgery

The spinal fusion surgery in Barcelona would give Elaine a 99% chance of being able to eat and take medication again

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Elaine Morrissey has Ehlers Danlos syndrome (EDS) which causes chronic pain, fatigue, vertigo, violent spasms, and digestive problems.

Elaine Morrissey has Ehlers Danlos syndrome (EDS) which causes chronic pain, fatigue, vertigo, violent spasms, and digestive problems.

Elaine Morrissey has Ehlers Danlos syndrome (EDS) which causes chronic pain, fatigue, vertigo, violent spasms, and digestive problems.

A fundraising appeal has been launched for a 37-year-old mum who suffers from a debilitating condition which also affected her young daughter. 

Elaine Morrisey and her six-year-old year old daughter Ruby are both afflicted by Ehlers Danlos syndrome (EDS) which causes numerous distressing symptoms.

They both endure chronic pain, fatigue, vertigo, violent spasms, and digestive problems.

Elaine now needs a feeding tube inserted as she is unable to eat or take medication.

Despite her own ordeal, Elaine has “pushed aside her own chronic illness, pain and horrendous symptoms to bravely care for Ruby who has been sick since she was a baby”, according to the fundraiser set up on the GoFundMe page.

“People with EDS need specialist care, but the surgery that Elaine so badly needs is not available at all for people with EDS under the national health system,” the fundraising page reads.

“This family have no choice but to appeal for help to pay for EDS care and for this life saving surgery with a private specialist in Barcelona, Spain.

“Her tube surgery has been delayed here as it is very risky. Elaine will die without nutrition and medication. The spinal fusion surgery in Barcelona would give Elaine a 99 per cent chance of being able to eat and take medication again it will also give her a better quality of life.”

The page reveals that Elaine and Ruby have recently received diagnoses of spinal instability including Atlanta Axial Instability (AAI) and Cranio Cevical Instability (CCI).

“This in short this means that a person’s skull is very dangerously unstable on the top of their spines and in Elaine's case there is also instability further down in her spine. Elaine urgently needs spinal fusion surgery at the top of her spine at C0-C2 and also at C4-C5 and she also needs to have her jugular veins decompressed surgically.”

Elaine's older son Jordan now cares for his mum and for Ruby as well.

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“This amazing and incredibly brave family have fought through and daily fight through the unspeakable hell of EDS,” it adds.

This surgery unfortunately cannot cure EDS, but it can alleviate the violent and debilitating spasms that now plague her body daily, relieve the pain in her head and spine, and stop her from deteriorating further.

While the fundraising now stands at just over 10,000, the final quote for Elaine's surgery costs in all will be around €80,000.

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