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support GoFundMe page set up for “fantastic and brave” two-year-old boy with an incurable condition


Members of the community in Roscommon are rallying together to support a “fantastic and brave” two-year-old boy with an incurable condition.

Last year, toddler Aidan Kenny was diagnosed a rare, incurable condition called Metachromatic Leukodystrophy (MLD).

The average life expectancy of a child diagnosed with MLD is six years old.

Since his diagnosis, Aidan has sadly lost the ability to move and needs to be fed through a tube. It is likely that he will later lose his sight, hearing, and much of his cognitive ability.

However, he “still has his wonderful smile” and is bravely battling MLD.

A family friend described Aidan as a “wonderfully playful and curious little lad” and added that he “loved playing with his Lego and being out with dad Sean on the tractor.”

While there is no cure for little Aidan’s condition, the local community in Roscommon are banding together to help the Kenny family in any way they can.

A GoFundMe page has been set up to for Aidan and his parents, Sean and Deirdre, and has raised more than €21,000 so far.

A spokesperson said: “The level of care that Aidan requires limits Seán and Deirdre’s ability to work at this time.

“Despite the valuable support they have received from the HSE and the Jack and Jill Foundation, a lot more resources are required to help Aidan make the best of his days.”

You can donate to Aidan's GoFundMe page at:


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